By focus group methodology, we examined the opinions and requirements of persons with ALS, their caregivers, and health care assistants with regard to developing a brain-computer interface (BCI) system that fulfills the user's needs. Four overarching topics emerged from this analysis: 1) lack of information on BCI and its everyday applications; 2) importance of a customizable system that supports individuals throughout the various stages of the disease; 3) relationship between affectivity and technology use; and 4) importance of individuals retaining a sense of agency. These findings should be considered when developing new assistive technology. Moreover, the BCI community should acknowledge the need to bridge experimental results and its everyday application. © 2015 Elsevier Ltd and The Ergonomics Society.

Developing brain-computer interfaces from a user-centered perspective: Assessing the needs of persons with amyotrophic lateral sclerosis, caregivers, and professionals

Simione, L.;
2015-01-01

Abstract

By focus group methodology, we examined the opinions and requirements of persons with ALS, their caregivers, and health care assistants with regard to developing a brain-computer interface (BCI) system that fulfills the user's needs. Four overarching topics emerged from this analysis: 1) lack of information on BCI and its everyday applications; 2) importance of a customizable system that supports individuals throughout the various stages of the disease; 3) relationship between affectivity and technology use; and 4) importance of individuals retaining a sense of agency. These findings should be considered when developing new assistive technology. Moreover, the BCI community should acknowledge the need to bridge experimental results and its everyday application. © 2015 Elsevier Ltd and The Ergonomics Society.
2015
Interfaces (computer)
Medical computing
Neurodegenerative diseases, Amyotrophic lateral sclerosis
Assistive technology
Customizable
Focus group methodology
Sense of agencies
Technology use
User-centered
User-centered approach, Brain computer interface, adult
amyotrophic lateral sclerosis
Article
artificial ventilation
assistive technology
brain computer interface
caregiver
clinical article
controlled study
disease course
electroencephalography
emotionality
female
health care need
health care personnel
human
information processing
information system
male
methodology
middle aged
quality of life
amyotrophic lateral sclerosis
brain computer interface
caregiver
emotion
health service
psychology
sense of coherence
standards, Adult
Amyotrophic Lateral Sclerosis
Brain-Computer Interfaces
Caregivers
Emotions
Female
Focus Groups
Health Services Needs and Demand
Humans
Male
Middle Aged
Sense of Coherence
Amyotrophic lateral sclerosis
Brain-computer interfaces
User-centered approach
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Utilizza questo identificativo per citare o creare un link a questo documento: https://hdl.handle.net/20.500.14090/3275
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